Jim, Hannah & I had an awesome day on Friday checking out Washington DC. Hannah loved the "Open Top" bus ride all around the city. We are just so happy to be having some time out of a hospital & feeling like we are "on vacation" a bit before we check into NIH on Monday.
We canceled our appointment with Johns Hopkins b/c Kaiser hasn't approved the consultation yet. We are waiting for approval & then we will reschedule (hopefully for while we are still in the area this coming week).
Hannah seems to be feeling good -- she is taking an oral anti biotic plus the another medication to suppress her immune system (so it will stop fighting with her bone marrow), besides that she is just being a normal kid!
Today we have a big treat about to arrive: Aunt Rachel, Cousins Blair, Sarah & David. They are driving down from Philadelphia & checking into a room at the same hotel where we are staying --it is going to be a party tonight!!!!!
PS -- Lily, WE LOVE YOU!!!! The true highlight of our day was seeing YOU on the blog. We have watched your video about a hundred times. You are too cute for words!!!!!!!
Saturday, June 13, 2009
Day in Washington DC
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Looks like you had an awesome time on the DC bus tour. That IS a very good idea, especially since walking around the mall is sure to wear you out...especially in this heat & humidity! Glad you had fun.
I checked with my nurse friend who works at NIH...she works with aplastic adults, so I guess she is not working with peds on her current rotation. She sends her best wishes, anyway.
Love from Maryland,
Beth
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