We are here at my parent's place where I grew up & going back to NIH this afternoon. My 22 year old cousin, Blair, from Indianapolis is coming to NIH to hang out with us & help with Hannah ... and Lily, when she gets here next week!!! Thank you, Blair!!!!!!!!!!! I am so grateful to have you coming ... you are the best & Hannah LOVES you!!!!
Hannah's appointment at the outpatient clinic did not go well on Tuesday. Her port accessing was a bit of a nightmare .... at poke #4 we got enough blood for all the vials that needed to be filled. Poor Hannah was BESIDE HERSELF .... oh my goodness. I don't blame her for an instant. Poor thing! We have a game plan for Friday morning's clinic appointment & I am just hoping things will go much better. Truly, Hannah needs things to go much better! After all the trauma, Hannah did not need transfusions -- her wbc was 3.3; hemoglobin was 8.2 & platelets were 22.
Although we are out of the hospital & appear to be having vacation on the East Coast. I was reminded last night when Hannah asked me to take her temperature that things with her disease can change in an instant. In those 2 minutes waiting for the thermometer reading, I was mentally getting ready to jump in my mom's car & head back to the hospital at NIH. There is no plan with Aplastic Anemia. No road map to follow for her treatment schedule ... we just go from one situation / complication to the next -- with many fun & happy times all mixed in everywhere. Her temp was 99.1 so we got to stay at Grandma's for one more night!! :-)
Last night we celebrated my nephew's 13th birthday ... Happy Birthday, Dave! Hannah & my mom made the cake & Hannah decorated it all by herself. She also made the most precious card for David ... a treasure & she thought it was hilarious to tape a penny inside her card as her "gift" to David. Oh my. Hannah had a blast hanging out with her teenage cousins & laughed so hard that it required a change of clothes ... good times!! Thank you, Lord!
Thursday, July 9, 2009
Where I Grew Up ...
"Whoever gives heed to instruction prospers, and blessed is he who trusts in the Lord. "
Proverbs 16:20
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3 comments:
Praise the Lord that you and Hannah are out and doing some normal things. We will be praying for your vacation, that everything stays within the needed ranges to enjoy your time as a family.
Godspeed. The Pecks
It is good to hear that you are doing well. Just know we are praying for you and your family.
So glad you are able to do the visit and enjoying it. Continued blessings for a recovery.
Love,
Inge
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